Below is a list of organizations dedicated to cancer research or to helping patients and their loved ones fight cancer.
The Association of American Cancer Institutes comprises 93 leading cancer research centers in the United States. AACI's membership roster includes National Cancer Institute-designated centers and academic-based cancer research programs that receive NCI support. The Association is dedicated to reducing the burden of cancer by enhancing the impact of the nation's leading academic cancer centers. A key element of AACI's mission is to assist the centers in keeping pace with the changing landscape in science, technology and health care. AACI does this by gathering and sharing best practices among cancer centers, providing a forum for our members to address common challenges and explore new opportunities, supporting initiatives that engage the membership in developing specific recommendations to the NCI, and educating policy makers about the important role cancer centers play in advancing cancer discovery."
A nationwide, community-based organization with chartered divisions in every state. ACS focuses on research and education, but it also provides some patient and community services that vary by chapter. The national organization's number is 800-ACS-2345. As the largest voluntary health organization in the United States, the American Cancer Society is passionately committed to saving lives from cancer. We’re working to create a world with less cancer and more birthdays — a world where cancer never steals another year from anyone’s life. We combine our relentless passion with the wisdom of nearly a century of experience to make this vision a reality, and we get results. We save lives by helping people stay well, helping people get well, by finding cures, and fighting back. Thanks in part to this work, nearly 12 million cancer survivors and countless others who have avoided the disease will celebrate a birthday this year. Stay up-to-date with the latest news and timely information about cancer research and treatment. We bring you news and features that explain what’s happening now in cancer topics that you care about.
Our mission is to provide information and support for children and adolescents with cancer and their families, to provide grassroots leadership through advocacy and awareness, and to support research leading to a cure for all children diagnosed with this life-threatening disease. While treatment for childhood cancer has improved drastically over the past 38 years of our organization’s existence from less than 20 percent survival to an approximate 75 percent overall five year cure rate, sadly childhood cancer remains the number one disease killer of our nation’s children. Children face aggressive treatments leaving a trail of devastation for their families. The diagnosis of a child with cancer is often at a time when the family is young and has a limited income. Often there are other small children to care for. Often one parent has to stop working to care for their sick child. The impact of having a child diagnosed with cancer is deeply felt financially, socially, and emotionally by the entire family. The needs are great and since our inception in 1970, ACCO has become a recognized leader both nationally and internationally in the providing pediatric cancer family support.
Provides information and support groups for people with prostate cancer and their families, as well as information on other urologic disorders. The toll-free number is 800-828-7866. The American Urological Association (AUA) Foundation is the world’s leading nonprofit urologic health foundation and the official Foundation of the American Urological Association. Our goal is to promote health, provide hope and promise a future free of urologic disease, including cancer. Since 1987 our unique relationship with the AUA, the professional organization of approximately 16,000 urologists, makes the Foundation the trusted, authoritative source for the most accurate and current urologic health information. We offer the resources and professional expertise of the AUA and its members to address the information and education needs of patients, caregivers and the public. Uniquely qualified to speak on behalf of urology, the Foundation provides authoritative service to the public, urologic patients, and the urology practices that support both.
A national organization focusing on the relationship between nutrition and cancer. The toll-free number is 800.843.8114. WASHINGTON, DC – First, the bad news: The number of new cancer cases that occur in the US each year is expected to surge as the population grows and ages; by the year 2030, that number will be over 50 percent higher than it is now. The good news, say experts at the American Institute for Cancer Research (AICR), is that this figure can be significantly reduced if Americans start making healthy changes today. In 2008, there were 1,437,199 new cancer cases in the US. It is estimated that 2,220,692 new cases of cancer will occur in the US in the year 2030 — a 55 percent increase. (Mexico will experience a 52 percent increase by 2030, Canada will experience a 66 percent increase.) The cancer research organization also is highlighting its estimate that about one-third of the most common cancers could be prevented through eating a healthy diet, being physically active and keeping off excess weight. In other words, over 740,000 of those predicted 2,220,692 cancers don't have to happen.
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An organization representing more than 10,000 cancer professionals worldwide, the society offers scientific and educational programs and other initiatives intended to foster the exchange of information about cancer.
Founded in 1998, C-Change is the only organization that assembles key cancer leaders from the three sectors — private, public, and not-for-profit — and from across the cancer continuum — prevention, early detection, treatment and quality of life. Our mission is to eliminate cancer as a major public health problem at the earliest possible time by leveraging the expertise and resources of our unique multi-sector membership.
A national organization that helps people with cancer and their families, offering professional one-to-one counseling, support groups, educational programs, workshops and teleconferences. Professional individual and group counseling is provided toll-free at 800-813-HOPE and online via the website.
The CLRC is a national, joint program of the Disability Rights Legal Center and Loyola Law School Los Angeles. The CLRC provides free information and resources on cancer-related legal issues to cancer survivors, caregivers, health care professionals and others coping with cancer.
A membership group working to improve hospice care for children. The toll-free number is 800-242-4453. "CHI's ultimate goal is to so ingrain the hospice concept into pediatrics that it isn't considered a separate specialty, rather, an integral part of health care for children and adolescents."
Our mission is to find a cure and improve the quality of life for those affected by bile duct cancer. As our reach continues to expand, we examine ways to improve diagnosis and early detection and advance therapies for prolonging life.
CLF raises money for lymphoma medical research and provides support and education for lymphoma patients and their families.
A national nonprofit foundation whose mission is to fund and support children’s cancer research and provide information and resources to all those affected by children’s cancer. CureSearch raises funds for promising research conducted at more than 175 hospitals across the nation. These hospitals participate in National Cancer Institute sponsored clinical trials conducted by the Children’s Oncology Group. The toll-free number is 800-458-6223.
The staff of the Cancer Liaison Program, located in FDA's Office of Special Health Issues, work with FDA's oncology medical staff to bring the patient advocate's perspective into the review of new drugs to treat cancer. The staff also meets with organized patient advocacy groups to listen to their concerns about drug development and to assist them in understanding the FDA drug regulatory process. Calls from cancer patients and their loved ones are routinely answered by the staff to help callers with questions about cancer clinical trials and/or cancer drug development.
The Foundation for Women's Cancer provides information on the leading types of cancer including gynecologic cancers, ovarian cancer, endometrial cancer and cervical cancer. You can read about ovarian cancer survivor stories and gather additional information on cancer statistics, graphs and charts as well as clinical trials for cancer and new cancer treating drugs.
Friends of Cancer Research is our country’s leading voice in advocating for policies and solutions that will get treatments to patients in the safest and quickest way possible. Friends of Cancer Research (Friends) develops groundbreaking partnerships and creates a more open dialogue among both public and private sectors and tears down the barriers that stand in the way of conquering cancer. By collaborating with premier academic research centers, professional societies, and other advocacy organizations, Friends is able to accelerate innovation.
The Familial Ovarian Cancer Registry was established in 1981 by M. Steven Piver, M.D., former chairman of the Department of Gynecologic Oncology at Roswell Park Cancer Institute. In May 1990, the registry was renamed to honor the memory of comedian, Gilda Radner, who died of ovarian cancer in 1989. Radner’s husband, film actor Gene Wilder, is honorary chairman of the registry. A project that collects data on the link between heredity and ovarian cancer. The toll-free number is 800-682-7426.
IMF provides up-to-date information and services for the treatment and management of multiple myeloma. The toll-free number is 800-452-2873. You are not alone. We are here to help you. Myeloma is a disease that can very often be treated successfully and many patients live long and productive lives after being diagnosed. We encourage you to learn as much as possible and to seek out the best care possible. The IMF is here to help you do that while we work towards better treatments and a cure
The Journal of the National Cancer Institute (print ISSN: 0027-8874, online ISSN: 1460-2105) publishes peer-reviewed original research from around the world and is internationally acclaimed as the source for the most up-to-date news and information from the rapidly changing fields of cancer research and treatment. For the past several years, the JNCI has been ranked as one of the most-cited original-research cancer journals by the Institute of Scientific Information in its annual Journal Citation Reports.
Did you know? 1960s: The Leukemia Society is renamed The Leukemia Society of America to reflect a national reach. LSA is a national agency organized to fight leukemia and related diseases (all lymphomas, including Hodgkin's disease, and multiple myeloma). The mission of The Leukemia & Lymphoma Society (LLS) is: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. LLS is the world's largest voluntary health agency dedicated to blood cancer. LLS funds lifesaving blood cancer research around the world and provides free information and support services. Our key priorities will ensure that: The Leukemia & Lymphoma Society helps blood cancer patients live better, longer lives.
LRF raises money for lymphoma medical research and provides support and education for lymphoma patients and their families. Lymphoma is a type of blood cancer that occurs when lymphocytes--white blood cells that help protect the body from infection and disease--begin behaving abnormally. Abnormal lymphocytes may divide faster than normal cells or they may live longer than they are supposed to. Lymphoma may develop in many parts of the body, including the lymph nodes, spleen, bone marrow, blood or other organs.
Provides comprehensive information on understanding clinical trials, finding specific trials, research news and other resources. Search NCI's list of 8,000+ clinical trials now accepting participants, or use more search options to search the set of 19,000+ clinical trials that are no longer recruiting.
You have many choices to make before, during, and after your cancer treatment. One choice you may be thinking about is complementary and alternative medicine. We call this CAM, for short.
A brain tumor is difficult but support can help you through it. NBTS provides comprehensive support programs for patients and their loved ones. The toll-free number is 800-770-8287.
The National Cervical Cancer Coalition (NCCC) founded in 1996, is a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease.
Disseminates information on complementary and alternative (CAM) medicine to practitioners and the public. The website provides access to a CAM index consisting of more than 90,000 bibliographic citations from 1966 to 1997. Many Americans use complementary and alternative medicine. A group of diverse medical and health care systems, practices, and products that are not presently considered to be part of conventional medicine. Complementary medicine is used together with conventional medicine, and alternative medicine is used in place of conventional medicine. (CAM) in pursuit of health and well-being. The 2007 National Health Interview Survey (NHIS), which included a comprehensive survey of CAM use by Americans, showed that approximately 38 percent of adults use CAM. This fact sheet presents an overview of CAM, types of CAM, summary information on safety and regulation, the mission of the National Center for Complementary and Alternative Medicine (NCCAM), and additional resources.
NCCS advocates for quality cancer care for all people touched by cancer and provides tools that empower people to advocate for themselves. Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life. NCCS strongly believes in evidence-based advocacy that reflects the needs of all cancer survivors to effect policy change at the national level. By advocating for patient-centered, coordinated care through treatment planning and care planning, NCCS is ensuring cancer survivorship remains at the center of healthcare policy.
Includes links to information about a number of health topics, medical dictionaries, databases (including MEDLINE), clearinghouses, directories, organizations, publications, health news and consumer health libraries. The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, is the world's largest medical library. The Library collects materials and provides information and research services in all areas of biomedicine and health care.
The National Lymphedema Network (NLN) is an internationally recognized nonprofit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on management of primary/secondary lymphedema and related disorders, and education in risk reduction practices for all individuals at risk for or affected by lymphedema.
Maintains a registry of bone marrow donors, provides information on how to become a donor and organizes donor recruitment drives. The toll-free numbers are 800-627-7692 and 800-526-7809. If you are a possible match for a patient, we will contact you with important next steps. New patient searches begin every day, so you could be a match for a patient soon or many years from now, or you may never be identified as a match for someone. If we do contact you, you might be one of a number of potential matches or you may also be the only one on the registry who could save a patient's life.
The National Surgical Adjuvant Breast and Bowel Project (NSABP) is a clinical trials cooperative group supported since its inception by the National Cancer Institute (NCI). We have a more than 50-year history of designing and conducting clinical trials that have changed the way breast cancer is treated, and, more recently, prevented. It was the NSABP's breast cancer studies that led to the establishment of lumpectomy plus radiation over radical mastectomy as the standard surgical treatment for breast cancer. We were also the first to demonstrate that adjuvant therapy could alter the natural history of breast cancer, increasing survival rates, and the first to demonstrate on a large scale the preventive effects of the drug tamoxifen in breast cancer.
Sponsored by the University of Pennsylvania, OncoLink is a multi-media cancer information site. Receive cutting-edge information from some of the foremost cancer authorities from the University of Pennsylvania, delivered to your email.
The Oncology Nursing Society (ONS) is a professional organization of over 35,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing. Our mission is to promote excellence in oncology nursing and quality cancer care. Our vision is to lead the transformation of cancer care. Our core values are Integrity, Innovation, Stewardship, Advocacy, Excellence, and Inclusiveness. ONS members are a diverse group of professionals who represent a variety of professional roles, practice settings, and subspecialty practice areas. Registered nurses, including staff nurses, advanced practice nurses, case managers, educators, researchers, and consultants, and other healthcare professionals, benefit from membership. The Society offers useful information and opportunities for nurses at all levels, in all practice settings, and in all subspecialties.
The Orange County Cancer Coalition (OC3) was formed in 2009 with one purpose: to improve comprehensive patient-centered cancer prevention and care for all Orange County. Since then, members of the OC3 have been working together to create this website — a one-stop-shop of cancer resources and services available throughout Orange County.
Provides cancer patients with help dealing with insurance coverage, payment for managed care treatment, and help understanding managed care. The toll-free number is 800-532-5274. The Process is Simple. Patient Advocate Foundation's Patient Services provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.
The mission of Ronald McDonald House Charities (RMHC) is to create, find and support programs that directly improve the health and well being of children. Guiding us in our mission are our core values: Focusing on the critical needs of children; celebrating the diversity of the programs we offer and the staff, volunteers and donors who make them possible; staying true to our heritage of more than 36 years of responsible stewardship; operating with accountability and transparency. A national network of temporary housing facilities for families of children hospitalized with life-threatening illnesses. Many states and major cities have Ronald McDonald Houses.
SHARE's mission is to create and sustain a supportive network and community of women affected by breast or ovarian cancer. SHARE brings these women and their families and friends together with others who have experienced breast or ovarian cancer, and provides participants with the opportunity to receive and exchange information, support, strength and hope. SHARE's work focuses on empowerment, education and advocacy to bring about better health care, an improved quality of life, and a cure for these diseases.
A national organization focused on the treatment and prevention of skin cancer. The toll-free number is 800-754-6490. The Skin Cancer Foundation is the only international organization devoted solely to education, prevention, early detection, and prompt treatment of the world’s most common cancer. Take your stand against skin cancer.
Welcome to Stand Up To Cancer. Since our launch in 2008, we’ve been amazed by the outpouring of generosity and hope from the ever-growing SU2C community. You’ve shared your stories. You’ve launched stars in honor of loved ones. You’ve sent letters to Congress. You’ve spread the word to friends and family. You joined us for our second, commercial-free telecast on September 10, 2010 and, most importantly, pledged over $80 million to accelerate ground-breaking research and bring new treatments to patients as quickly as possible. We've all come together — from patients to clinicians, from advocates to lawmakers, from children to teenagers to parents and parents of parents — in support of one cause: finding a cure for cancer. We can’t thank you enough for making Stand Up To Cancer what it is today. This is where the end of cancer begins.
Support for People with Oral and Head and Neck cancer (SPOHNC) is a self-help nonprofit organization involved in the development of programs of support. As such it can have an enormous positive impact on meeting the psychosocial needs of patients as well as preserving, restoring and promoting physical and emotional health. Our Mission: SPOHNC is dedicated to raising awareness and meeting the needs of oral and head and neck cancer patients.
Susan G. Komen fought breast cancer with her heart, body and soul. Throughout her diagnosis, treatments, and endless days in the hospital, she spent her time thinking of ways to make life better for other women battling breast cancer instead of worrying about her own situation. That concern for others continued even as Susan neared the end of her fight. Moved by Susan’s compassion for others and committed to making a difference, Nancy G. Brinker promised her sister that she would do everything in her power to end breast cancer forever. That promise is now Susan G. Komen for the Cure®, the global leader of the breast cancer movement, having invested more than $1.9 billion since inception in 1982. As the world’s largest grassroots network of breast cancer survivors and activists, we’re working together to save lives, empower people, ensure quality care for all and energize science to find the cures. Thanks to events like the Susan G. Komen Race for the Cure® and the Susan G. Komen 3-Day for the Cure®, and generous contributions from our partners, sponsors and fellow supporters, we have become the largest source of nonprofit funds dedicated to the fight against breast cancer in the world.
An association of ostomy chapters dedicated to complete rehabilitation of all "ostomates." The toll-free number is 800-808-7866. The United Ostomy Associations of America, Inc. (UOAA) is a national network for bowel and urinary diversion support groups in the United States. Its goal is to provide a nonprofit association that will serve to unify and strengthen its member support groups, which are organized for the benefit of people who have, or will have intestinal or urinary diversions and their caregivers. MissionUOAA is an association of affiliated, nonprofit, support groups who are committed to the improvement of the quality of life of people who have, or will have, an intestinal or urinary diversion. It is dedicated to the provision of information, advocacy and service to, and for, its affiliated support groups, their members and the intestinal/urinary diversion community at large. It is organized to grow and develop while remaining independent and financially viable.
The faculty, staff and students of the Department of Epidemiology are dedicated to research, education and advocacy. Through research and the education of future researchers we are battling the debilitating effects of chronic diseases while serving as advocates to promote good health in our society at-large. As epidemiologists, we study environmental and genetic factors affecting both health and disease within large human populations. Epidemiological research serves the discipline of medicine in helping to empirically understand how many people have a disease or disorder, what may predispose one to a disease or disorder, if those numbers are changing and how the outcomes will affect our health as a society and economy.
Vital Options is a not-for-profit cancer communications, support, and advocacy organization with a mission, to facilitate a global cancer dialogue. Founded in 1983 by Selma Schimmel when she was diagnosed at age 28 with breast cancer, Vital Options was the first psychosocial and advocacy organization for young adults with cancer. In 1996 with the launch of "The Group Room®" cancer talk radio show, Vital Options evolved into a cancer communications organization for people of all ages. Vital Options is noted for its pioneering and innovative approaches in using cutting edge technology to advocate and communicate about cancer through a variety of audio and video formats. Additional projects include The CancerNewsMinute®, CancerTalk(SM), CancerTours™, The Professor & The Survivor®, Advocacy in Action® and National Young Adult Cancer Awareness Week®.
Y-ME provides support to individuals concerned about, or diagnosed with, breast cancer. A 24-hour, toll-free hotline is staffed by trained counselors and volunteers who have had breast cancer. The number is 800-221-2141. Y-ME National Breast Cancer Organization is the only place in the world where someone touched by breast cancer can call — 24 hours a day, 7 days a week, 365 days a year — to talk to a breast cancer survivor and be understood in 150 different languages. For more than 30 years, Y-ME has been working to assure that no one faces breast cancer alone.